Principal Investigator

• Ken R. Smith, Ph.D.
  Huntsman Cancer Institute

Participating Institutions

• RMCGC
• Georgetown University
• Fred Hutchinson Cancer Research Center
• University of California - Irvine
• TCGC
• Johns Hopkins University
• Duke/Emory/University of North Carolina
• MGH Statistical Coordinating Center
• Yale Center for Informatics

Synopsis

Previous research suggests that enrollment of diverse groups into the CGN national registry may be challenging. For example, existing familial cancer registries consist mostly of individuals at very high risk and are not diverse in terms of racial and ethnic background or demographic characteristics. Moreover, individuals have been enrolled into these registries over a number of years. To accomplish the goals of the CGN, probands and family members from diverse populations need to be enrolled into the registry within a relatively short period of time. Despite this, strategies to enhance proband recruitment into the CGN have not been developed or evaluated. Therefore a prospective randomized trial among CGN probands was conducted to evaluate the impact of enrollment incentives on participation in the CGN.

View the protocol summary report.